Showing posts with label heart. Show all posts
Showing posts with label heart. Show all posts

Saturday, December 21, 2013

Happy 2nd Heart Day Mila Hopey Bear!


2 years ago today our sweet Mila Hope was recovering from Open Heart Surgery. I've been looking at her pictures for the past 2 days remembering the day we had to hand her over not knowing for sure if we'd get to take her home again. I can't think of any other day in my life that was harder than that day. We trusted the Lord and knew He had a plan for Mila's life! We are so grateful to CHP and her surgeon Dr. Morell for performing her life-saving surgery. It still amazes me how the Lord orchestrated our journey to Mila, how He sustained her and got us there just in time, and how He has redeemed her life. From tiny and sick, scared, malnourished babe, to strong, healthy, bright, and FULL OF LIFE. It's still tough to look at her pictures, but our sweet girl is a survivor by the grace of God! It is my privilege to watch our beautiful girl grow up....and I never forget for even one second that her life is a TRUE miracle! Happy Heart Day (12/19) Mila Hope!

Mila: miracle, favoured, emulating, pleasant or soft

Tuesday, October 22, 2013

HAPPY HEART DAY ZOYA!

October 14, 2013 marked the FOUR YEAR anniversary of Zoya's heart surgery. Zoya had open heart surgery in Ukraine at 16 months of age. Last year I blogged about my feelings on Zoya going through open heart surgery alone in Ukraine. You can read that post HERE.

Sometimes I almost can't stomach the thought that Zoya went through that surgery all alone. I know, in my heart, the Lord was there with her, and I hope that she was not scared, going through that all alone.  My human mind can't imagine how she could have such a strong will to live to make it through that surgery, nor can it fathom our tiny little Zoya girl going through that without us by her side (especially, as I said in the post linked above, after seeing Mila go through open heart surgery).  I know my God is capable of wiping those memories from her little memory bank and I pray for that!

I want to remember how thankful I am to Zoya's orphanage director for reaching out to a colleague who offered to do Zoya's heart surgery. The director told us that Zoya became more and more sick as time went by and finally she was not eating at all, not breathing well, and losing weight. We understand how big of a miracle it is that she actually DID have the opportunity to have open heart surgery as an ORPHAN. It doesn't happen often. However, with Zoya's specific heart defects, had she been born here, she'd have likely had her heart repaired by the age of 3 months...at the very latest 9-12 months old if she was gaining weight and doing well. She was 16 months old when she had her heart surgery in Ukraine. We committed to her in September 2009 and were told she would need heart surgery when she got home. We were praying for her because we knew we probably wouldn't travel for at least 5-6 months after that. Sometime in November 2009, I opened my email while on my lunch break at work and saw the email from our facilitation team that said she had gone through open heart surgery on October 14th. My first thought was complete sadness, followed by thankfulness. It was such a mix of emotions. All I could think was she went through that alone, but thankful thoughts quickly followed. After talking to the director during our adoption of Zoya, it's clear she couldn't have waited until we got there, and we simply can NOT imagine our lives without our sweet girl. We are so grateful to God for orchestrating that!

Zoya had a recent cardiology check up and we are back to annual visits instead of every two years. When we first had Zoya's heart checked when she was newly home, the cardiologist said the right side of her heart was bigger than it should be. He explained that it was large because it had worked so hard for so long with blood flowing in the wrong direction. At that time he told us that this may play into her life expectancy (much into the future), although obviously nobody can know. Over the next few cardiology visits the size of the right side of her heart appeared to be getting smaller and healthier. At her last visit he brought up again, that the right side of her heart is showing a little dysfunction but not enough to cause any problems at this point in time. He thinks, at this point in time, her heart is functioning as good as can be expected and she won't likely have any congestive heart failure issues any time in the near future. He said any changes that may happen would happen slowly over time. So while that made us feel better, it sure reminds us how precious life is. We are so thankful for every single day the Lord blesses us with each one of our loved ones. It's a reminder to make each and every day count! Tomorrow's not promised...heart defects or not.

We have a total of 5 pictures of Zoya that were taken before we met her. It's like putting together pieces of a timeline with very few clues. I'm grateful for these pictures as they give a glimpse into her life before us. Again, it feels like she's ALWAYS been here and it almost seems like a cruel joke someone is playing on me when I'm reminded she went through 22 months of life without us. When I look at the pictures below, I see our Zoya girl, trapped, and scared. You can't deny the look of fear and lack of love in her pictures. Knowing her now, and looking back at these pictures, I can best describe them as a candle's flame nearing the end of it's light...there are flickers of hope I see in her eyes, but flickers of despair as well and, well, that just kills me.

This is the picture that was on Reece's Rainbow that we (Shawn!) fell in love with! We thought for sure she'd have red hair. Instead she's more of a dirty blonde with strawberry highlights! 

We were told these pictures were recent when we committed to her. However we committed in September and with the Christmas tree behind her, I'm pretty sure these pictures must have been taken in December the year before (2008). That would mean she was 6.5 months old in these two pictures. Notice the hand holding her head up? Look at her tiny fingers and her HUGE blue eyes. Those ears can't be mistaken for any other child and her heart shaped mouth is just so perfect too! 

The orphanage director gave us this newborn picture, along with a baptism certificate and cross that belonged to Zoya. Those eyes are unmistakable! I always look at this picture and wish so much that I could have known her then, held her then, and loved her then. She looks well taken care of in this picture with that beautiful sweater. I'm not sure if this picture was taken at the hospital or the orphanage. Oh my sweet girl! 

And these pictures were also given to us by the orphanage director. I'm assuming they are from Christmas 2010. We were only about 3 months away from meeting her when this picture was taken! She looks much healthier here than in her previous year's Christmas picture....clearly doing much better (medically speaking) after her heart surgery. She was about 18 months old in this picture. They sure dressed her up pretty for her Christmas picture that year! They knew she had a family coming!

Oh, what I'd give to just hold this sweet girl and tell her it was all going to be okay! So thankful,now, that I can do that every day for the rest of my life!

HAPPY 4TH HEART DAY ZOYA! I'm sorry I wasn't there to hold your hand through your surgery, but Jesus held your heart in His hands, which was much better than what I could have done anyways. I'm so thankful that your heart was fixed so you could spend your life with us. We don't deserve the unconditional love you give us, and we feel forever grateful for that sweet little mended heart of yours! 


Wednesday, August 8, 2012

Mended Little Heart

Mila had her 6 month cardiology follow up appointment today. I was nervous, as always, right before cardiology appointments. She weighed in at almost 23 pounds and sprouted to just over 30 inches!
Here she is getting her EKG....
a mouth full of snacks typically keeps her pretty happy....imagine that ;)
I know you'd never guess based on her size!
The cardiologist came into the room and looked over her records and asked how she was doing. I blurted out "fabulous, really really good." Then I thought to myself, "Ugh now since I said that out loud something will be wrong...stupid stupid stupid." I talked myself into calming down and realized I was being ridiculous thinking that! He was just as excited as I was that I didn't have to check any of the "other health conditions" on the checklist they give us at each appointment. Last time quite a few of those boxes were checked with symptoms and other health conditions and this time I read through them all twice because I couldn't believe I didn't have to check ANYTHING. I was so thrilled in fact, that I wrote in big letters right across it "NONE" with one of my best 2nd-grade-teacher smiley faces! Maybe that's why he was just as excited as I was...it was that smiley face ;)

Anyways, we chatted a bit about orphans as we always do, and then he checked her over.  Last time he decided to keep her on the Lasix because her liver was still low and palpable and there was just the smallest indication of extra fluid. This time her liver was exactly where it was supposed to be and no indication of issues with extra fluid. So we get to stop the Lasix, which means Mila is completely MED-FREE!! I think she gets a diploma for that or something! He listened to her heart and looked rather confused. Immediately my heart jumped to my throat and I asked what was wrong. He said something to the effect of "I could have sworn she had leak from her VSD patch last time she was here. And I told him he was right, that she did. He said "I don't hear anything at all. Usually leaks don't go away" He even double checked her records. I loved seeing that confused look on his face and thought "That's MY God!" When he finally got to the echo he saw just the teeniest tiniest (definitely smaller than before) lead from her patch. We were told this happens after patching ASDs and VSDs sometimes if it's a big hole and she would just probably have it for life as it was in a place where there really isn't much ability to grow new muscle/tissue to close on it's own and it shouldn't cause her any problems. It doesn't much indicate anything medically that it's smaller, except that God is healing her heart in ways that can't be explained by medicine :) And I think that's pretty cool! He took new measurements for pulmonary hypertension and her numbers showed no pulmonary hypertension any more!!! We were hopeful that the surgery would solve the problem of the pulmonary hypertension but it was a "wait and see" kind of deal. Once he finished the echo, he smiled and said "see you in two years!" I was definitely not expecting TWO years! But I'll take it! Praising God tonight for healing our jelly bean and shining through her!
The "look"

Getting so big!

Love that smile!