Wednesday, June 26, 2013

Cuteness!

Mila and Sofia are much more cooperative in letting me take 100 pictures of them than Zoya girl these days! She just doesn't have time for pictures lately! I managed to snap a few of her yesterday when I grabbed my camera, but I had to twist her arm...sooooo here are a bunch of mostly Mila and Sofia. I've got the most adorable kids if I do say so myself ;) I think it's pretty easy to tell them apart, but in case you get stumped, Sofia has the green bow and Mila always has her necklace on. (By the way for those that have asked, it's a baltic amber teething necklace. Google can tell you all about it!) Mila is getting a few more curls in her locks but only on the left side of her head haha, and Sofia seems to have a ton more since her hair cut! 







 (Mila-she has been lovin' the bear crawling lately!)



 (She's actually cracking up here, not crying!!)












Both girls are currently teething......oiy! 

And they still insist on sticking their fingers in the other ones mouth to see what will happen, almost always with the same end result! 

Mila looks like a giant here! She is only about 3 pounds ahead of Sofia now, and I'm not sure how much taller. I'm thinking she's got her by a bit on height! 

The hitting stage........(with Mila it's more like a tap haha) 

There she is! 


Still one of Zoya's favorite games! 












Such an awesome big sister! 


One more failed attempt at a picture of all 3 :) At least they're all there! 




Saturday, June 22, 2013

A Mila Update!

Mila has been making HUGE progress since having her tonsils and adenoids out. It could be a coincidence, or it could be that she's sleeping so much better and has a lot more energy (that's my guess!). She is sleeping in later (now she'll wake up around 6:30 instead of 5:30) most days and she seems a lot more well rested. She doesn't fall asleep in the car nearly as much any more. She only seems to get sleepy right before her nap. Before her surgery she was falling asleep throughout the morning...and she could fall asleep just about anywhere! Let me just say, I'm so thankful to have that one behind us....that recovery was ROUGH! It took her about a month until she was back to herself completely!

Since her surgery she's learned to pull to stand on furniture and cruise along furniture! She's walking in her gait trainer daily and even took a few steps yesterday without the "seat" piece attached! She will walk while holding our hands as well. She's still doing treadmill thearpy, which she has made a lot of progress in as well! She can walk for about 15 minutes, taking up to 25 steps at a time before putting her weight into the harness to take a break! She still has a long way to go to independent walking, but she has blown us out of the water with her HUGE progress in such a short period of time! I feel bad thinking that maybe the sleep apnea was holding her back more than we thought. But I'm so glad it's all taken care of now!

She's also saying "mama" to get my attention (allllll dayyyyy lonnnnnng!). While this is much nicer than whining, she's now perfected the most pathetic whiney "mama" if I don't get to her fast enough, or if I have to leave the house without her.....it is pretty adorable :) She says dada and bubble as well. She's babbling a lot more and her favorite sound is the cutest little "la, la, la, laaaaaaaaaaaa!"

The other HUGE thing she is doing, which TOTALLY surprised me, is going potty ON THE POTTY! She uses the big potty, too! I was going to wait until closer to 3 until I started anything potty related with her, but she has shown me she is ready to start now! It all started because she was in the bath and I knew she had to "go." I put her on the potty and she did her business no problem. So I did that a few more times after her bath and before we knew it she was pooping on the potty every single night before bed with only one poop in her diaper instead of the potty for almost 3 weeks now! She will also pee on the potty when I put her on there, but is not close to telling us when she has to go. If she were walking I'd start full out schedule potty training with her, but I think we'll wait until her gross motor skills improve a bit more. For now we'll just keep doing what we're doing and it's nice to have one of the two little ones not pooping in diapers anymore!! Mila smiles so big when she goes potty on the potty and we all clap for her....it's pretty darn cute!

While we thought we were done with surgeries for the foreseeable future for Mila, she'll be having yet another one in August :( It will be eye muscle surgery. Currently she tilts her head very far back to watch tv, or see things far away, even with her glasses. She does this because she has nystagmus and she has found a "null point" where the nystagmus stops and where she can see clearly. The null point happens to be when she lifts her chin up and tilts her head slightly. As she is getting closer to walking, and because we know she already has balance issues due to a brain difference, tipping her head back while trying to walk will throw her off balance even more and it could prevent her from walking independently. Her prescription also changed a bit, so she got new glasses! She outgrew the pink frames and we got her the next size up in purple :) I think they're adorable!!

Here is a Mila Photo Dump! 

At one point I joked about putting one tonsil or adenoid back in because she was still awake at 10:30 one night!!! And she was not even close to tired, as you can see! 

Her crazy sleeping positions still continue, even after surgery! She slept in this position for 45 minutes of her nap! 

Mila's new glasses !

Mila + glasses + pigtail s= most adorable thing in the world! 

My favorite picture ever of Mila! (I wish it was high quality and not cell phone pic!)

Mila, who was awake again while everyone else was sleeping for the night, was making her scary face! 

She was getting some morning snuggles in with mama since she's usually the first one awake! Check out her cute haircut! 

This is what her "posturing" looks like....she lifts and tilts her head quite extremely so she can see better. She was watching tv in these pictures. This is always how she looks when watching tv or looking far away. 

No exaggeration, she can see better this way...poor girl :( Soon she won't have to hurt her neck to see well. 

And here she is working on some fine motor activities. 

The focus! 


This happened when I didn't get her down for her nap on time! 

She still LOVES swinging! 

 Blurry pic again, but this is her at physical therapy....she loves the platform swing 

We were so lucky to find an awesome family who lent us their old gait trainer until Mila's came in. She finally got her very own PINK gait trainer :) She usually LOVES it and barely gives me enough time to buckle her in before trying to run off in it! 

 Proud Potty Face! 

Standing, only holding on with 1 hand! This is a huge accomplishment for Mila girl! 


Here are a few videos of Mila in action! 

Mila cruising...

Mila in treadmill therapy...



Mila walking in her gait trainer....
 

Here is Mila's whiny "MAMA!!!!" when I was pretending to leave without her ;) 

And this one was too cute not to include....."I've got no strings to hold me down" or "Riverdance" as Shawn says!


I have plans for so many more blog posts including Sofia and Zoya updates, Sofia's first haircut, Sofia's Welcome Home Party, Father's Day, and more!!! If only the day had a few extra hours ;) 

Thursday, June 20, 2013

Sticks and Stones...

It's been a while since I sat down and did a "pour your heart out" blog post. Life with 3 children 5 and under is BUSY! Most days when I sit down at the end of the night my brain is mush and has completely run out of juice to write any coherent thoughts down. But we're still here, living each day one at a time....trying our best to give our girls the life we promised we would give them!

This strange thing has been happening lately. Moreso than usual. And I am still processing it all as I write this. I'm not a very confrontational person, AT ALL. In fact, my dad used to call me a "round-abouter" when I was younger. Even when I played Nintendo (I guess that dates me now, huh?) I never wanted to fight the bad guys, I preferred to just jump over them and go on my merry way, and most of the time it worked just fine! When it comes to confrontation, I'm an all or nothing person...I have no middle ground. I either shy away from the issue and sit on my thoughts, later wishing I would have had enough courage to stand up for what's right, or I go all out "Totally-Lose-Your-Cool-Mama-Bear" on people and then feel bad about that too. Since becoming a mom, I've definitely had more of the "lose your cool" moments and they're always over issues that involve my girls. All you moms reading this know what I mean when I say that Mama Bear Fury can rise up in you faster than lightening.

Anyways....lately we've endured some comments regarding our children that make my skin crawl. I've NEVER had a thick skin, it's a fault of mine. I'm too sensitive and defensive, this I know....but I feel like I'm justified in feeling upset when hearing some of these things. There are two groups of people, the first being those who say nasty things knowingly and because they are intolerant of differences. This is not the group of people I'm talking about...honestly those people are few and far between and I have no problem speaking my mind to those people because clearly their intentions are to hurt. But it seems to me there is a huge growing group of people-many professionals-who just don't seem to have the first clue about how talk to adoptive parents and/or parents of children with special needs.

I hesitate to even blog about this because I never want to come off as the chick who people feel like they can't say anything around in fear of hurting her feelings or in fear that they'll "say the wrong thing." But I feel that doctors, psychologists, school personnel, and other professionals should be held to a higher standard than your average Joe Schmo in knowing how to sensitively and respectfully speak to parents (in the presence of the children) about adoption and special needs related issues.

Imagine sitting down with a professional who is evaluating your child, with your child beside you, when this professional asks, "what happened to her real parents?" Say WHAT? Okay, I get that he needs that information for his report or to understand her situation better (maybe), but something as simple as "do you have any information on the biological parents?" would have been MUCH better to ask. Upon hearing this question, I turned my attention to Zoya, so sad she had to hear that (even if she didn't fully understand what he was saying). I looked back at him, sort of tilting my head to the left and squinching one eye almost closed while wrinkling my nose, because hearing that was worse than nails on a chalk board. It literally sent shivers up my spine. "Real parents" infers that we're somehow not real or not actually parents. I gently corrected him by saying, "We have very little information on her biological parents" (and then shared the little we had). He went on to ask if the three girls were blood related, which we get asked a lot. When I answered "no" he said, "Okay so they are half sisters then." He must have read the look on my face because he quickly changed that to, "I mean step sisters!" I kindly told him we consider them simply sisters and we'd never tell them they are step sisters to one another. I tried hard to remind myself he was compiling a report and needed technical details (or did he?). The rest of the meeting was really weird. I never said anything because he was a really nice guy. He had no idea his words cut so deep, completely clueless. Then when I got home from the second meeting with a copy of the report and read that Shawn and I were referenced as "her current caregivers" rather than parents, I felt shocked and sad. Half of you reading this will say that is not a big deal and there's no reason to be upset over that, and the other half will be as outraged as I was. We've worked DAMN HARD to earn the title "parents."  Please don't call us caregivers.  I've never heard of this in any other report for my children or for friends' children. Zoya is young enough now that she would never read this report, and maybe not understand the words that were said at that meeting, but I swear to you if these type of comments continue much longer in front of her I'm not going to be so graceful. It says to me that those professionals don't think she is capable of understanding what is being said about her and frankly, it pisses me off.

Imagine sitting at the doctor with your newly adopted child while the doctor asks repeatedly if we knew she had down syndrome when we adopted her because he can't wrap his mind around why we would do that. This question is the worst because it infers that she is not worthy of the life we hope to give her...the life we so deeply feel she is worthy of! Imagine going in for a sick child visit, seeing a different doctor than usual, and watching him flounder his way through trying to figure out if we currently know our daughter has Down Syndrome....because clearly, if we adopted her, we must not know that. The good old, "you are saints to adopt those children" also usually punches me right in the gut. The list goes on.....I never want Zoya or Mila or Sofia hearing this or feeling like we did them a favor and they are in debt to us, and this type of comment would surely elicit those thoughts. Zoya's getting to an age where she is starting to understand a lot more, so maybe that's why I've been more sensitive to these types of comments lately. I have this fierce need to protect my children from all things that could cause them hurt. I know I can't protect them from everything, but I'll tell you this much....I'll die trying!

When posting some of these things on facebook, some were outraged (even more than I was), while others felt I should have been more graceful (and maybe that meant not posting it on facebook?). I try my hardest to be graceful with comments such as these, especially when people say them out of ignorance and not out of hate. BUT, day after day of similar comments starts to break me, my tolerance level waxes and wanes based on the type of day I'm having because I'm human. I do often take time and share our girls stories with people whom I think would be touched by them because I believe their stories have power to change people....I've seen it happen many times. We'd be silly not to use this God-ordained story to bring glory to Him. BUT as their Mama, it's also my job to protect them. I wish I was better at letting some of these professionals know how their comments hurt me and my children. Instead, I stir over it wishing I'd have said something when I had the chance. My plea to those reading this is not to always try and be politically correct...that's not what this is about....my plea is to remember that words carry A LOT of weight, so please choose them carefully.

Here's a new twist on the old "Sticks and stones may break my bones but words will never hurt me."

"Sticks and stones may break my bones, but words will make me go in a corner 
and cry by myself for hours." Eric Idle (haha kidding) 

"Sticks and stones may break my bones 
but words can shatter my soul."