Tuesday, June 5, 2012

Ryan

One of the first people we met at Children's Hospital, when we were newly home, was Diane. As we stood outside of the airway clinic waiting to find out about the newest development and unexpected health issue with Mila, there was another mama sitting with her babe. I couldn't see him because of the angle of the stroller. Zoya, who knows no stranger ran right up and Diane said, "I think you and Ryan have something in common." As I peaked in at her sweet boy, this is the beautiful face I saw
Diane and I got to talking and I briefly shared our story of how Zoya and Mila came to be our daughters. She talked about Ryan's heart and how serious his Congenital Heart Disease was. We talked about Mila and her upcoming surgery and I told Diane how I was really stressed and worried because I had no idea what to expect and nobody from cardiothoracic surgery had even called me (other than the scheduler to give us a date which was just over a week away!). Within seconds she had the cardiothoracic department on the phone and passed her cell phone right over to me. She was clearly a mama who knew her way around the hospital and how to get in touch with the necessary people. I was grateful for her support and knowledge. But, now, I'm learning that knowledge comes at a cost. Having already spent so much time at the hospital with her son is what gave her that knowledge.

When Mila was recovering from Open Heart Surgery, Diane and her family were there as Ryan underwent his own procedures once again. We were discharged first and said goodbye to Diane and Ryan. They were discharged soon after. A couple weeks later, Mila ended up in the hospital with pericarditis and had to have another surgery to drain the fluid around her heart. When we left, Ryan had been admitted again. He was very sick. Up until that point the doctors had not agreed to attempt open heart surgery yet, because his situation was so serious and the risk was so high. So as we left, Ryan stayed. He ended up staying quite a long time and eventually had his open heart surgery. Against all odds, he eventually went home with a repaired heart. That was such a happy day for his family to see their son with a new heart and a new chance at life. Unfortunately he was only home for 9 days before they returned to Children's with complications. Ryan went in for a heart cath and a procedure to try to fix the problem and he has had a really tough struggle since. He is intubated and having trouble with his sats no matter what they do to help. His mama feels hopeless, rightfully so :(

They are desperately in need of your prayers. I know this blog has a lot of readers. PLEASE pray for Ryan and his family. Please speak the words they cannot even manage to squeak out. I cannot imagine being in this situation. Here is Ryan as he fights to get better! Miracles DO happen and I know a miracle is possible here! Please pray for this sweet boy and his family.

25 comments:

  1. Praying for Beautiful Ryan!!!!!!!

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  2. Will be praying for this precious baby and his parents! I can't imagine what they must be feeling. Praying for peace during this heart wrenching time.

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  3. Please let Ryan's mama know that we're praying for him and their whole family.

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  4. I love your blog. Ryan is my nephew (I took the B&W photo of him that you are using) Thank you for sending up prayers for my Pennsylvania Prince.

    Auntie Erin in Wisconsin

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    1. Oh my gosh, that photo is BEAUTIFUL! I think my favorite of him that I've seen!!!! Diane gave me permission to use it here, hope that's okay with you too! Thanks for stopping by!!!

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  5. Praying for him and for GOD to heal him. God can make a weak heart stay alive forever. I love Sanctus Real. We have a special place in our hearts for heart babies my husband's sister died at 7 weeks due to hlhs and ever since the family has been support for so many others. We are praying peace for his family. Mila and Zoya are just precious princesses.

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  6. What a precious little sweetheart!! Will definitely pray for sweet Ryan and his mama and family! Lord, place Your healing hand on this baby boy, stabilize his vital signs,sat rates etc, bring Ryan and his family comfort and peace as they travel this unknown and frightening path! Lord, give the doctors wisdom to know what steps to take, to know what the needs are and how to best meet them in order to bring health to this sweet baby. In Jesus name I pray, Amen!

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  7. I am praying for COMPLETE HEALING for Ryan, and for peace for his mama.
    Love and prayers, C Smith

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  8. Sending positive thoughts and lots of love to Ryan (such a beautiful wee babe) and his family! xx

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  9. Precious baby! I hate seeing them so sick.
    Will pray for strength and healing for Ryan.

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  10. Praying for complete healing for this precious little one!!!

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  11. We are praying in Georgia! Bless his precious little heart.

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  12. Prayers, lots of prayers. How heart breaking, may that family have the strength to get through this tough time.

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  13. We are also praying for precious Ryan's healing and for his sweet family!! May the Lord bring healing to Ryan quickly!

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  14. Done - prayers have been said for Ryan! Peace and comfort to mom and dad.

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  15. Prayers for health, healing and love for Ryan and his family. I will keep him in my prayers until we get word that he is home with his family and getting lots of love!
    Prayers from Montana xxoo.

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  16. Maria from SpainJune 5, 2012 at 5:10 PM

    I will be praying for sweet Ryan. Thanks for letting us know about him, Sarah. BTW, happy belated birthday to Zoya !!.

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  17. Sweet baby!
    I'm praying for Ryan, his family and caregivers.
    Love Anna

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  18. Praying for precious Ryan!

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  19. I will pray for Ryan and his family. I have a baby cousin who has HLHS and has had 2 open heart surgeries in his young life already and faces another as he gets older. I know that God answered many prayers on behalf of he and his family and He will do so for Ryan's family, too. Heavenly Father, please be with baby Ryan and his family. Please assure them with your gentle presence by giving them peace of mind and the ability to focus on looking forward to a healthy baby Ryan to take home soon. Please guide the doctors hands and minds as they make decisions regarding Ryan's care. Please comfort the family as they wait the many agonizing hours. All this is asked in the name of your son, Jesus. Amen

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  20. Praying as well. PLEASE keep us updated so we can watch this miracle unfold!

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  21. I am definitely praying for this sweet family. Thank you for sharing with us so we can storm the heavens

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  22. I am praying for Ryan to heal, and for his mama to stay strong. My heart breaks for her to see her baby suffering. Praying...

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