Friday, September 21, 2012

Glasses for Mila Part 2

Well we've been trying out some different frames AT HOME. Definitely a lot less stressful than in the office! I was so hopeful about the Specs 4 Us brand glasses as they are made specifically for kids with Down Syndrome and their unique facial features. The people at Specs 4 Us were so very helpful! They sent out 5 different frames for us to try at home. Unfortunately Mila was not happy about them and didn't keep them on  longer than a few seconds. I think the nose pads were really bothering her. Even on the smallest frames they were sliding into the corners of her eyes when she moved.

Darling, but too big!

She looks thrilled, right?

We had tried the Miraflex ones in the office and those flew of faster than I could blink! A couple of my DS mama friends shared THIS WEBSITE with me and I ended up ordering THIS PAIR to try with Mila. They came in the mail today (minus the lenses since I wanted to try them on her first to decide) and what do you know, she left them on for FORTY MINUTES without touching them!! I think we have a winner!! I just hope that she continues to like them once we get the lenses put in them. The lenses will be touching her long eyelashes so hopefully that won't bother her too much! I was so happy that she seemed to actually LIKE these glasses. They are feather light and must have been a lot more comfortable for her than the others we tried. I even put them on her 3 different times today and every time she left them on without bothering them!



Clapping for glasses! 




I can't wait to see her reaction with the lenses when she realizes she can see better! 

Wednesday, September 19, 2012

Happy 10 Months Home Mila Bean!

Well clearly, Mila is no longer a jelly bean in size, but the name definitely stuck :) I can hardly believe our sweet girl is the same child who was placed in our arms almost a year ago. I came across this video tonight and it had been some time since I last watched it. It still takes my breath away every time I watch it to see her so stiff and lifeless. But it also makes my heart happy to see her starting into my eyes and soul and knowing that from that day forward she never experienced another day without knowing love.


I remember being so worried about why she was so stiff and rigid, among other worries. I then learned this is a common posture for crib babies who have no idea really how to be held and snuggled. Mila was mostly kept in her crib because the staff thought that this was best for her since she was so sick. I wish so badly she didn't have to experience her first 7 months of life without us, but I trust that she came into our lives, and us into her, in the exact moment that we were meant to meet one another.

As much as it hurts to look back, it feels so good to know that God truly revived our beautiful daughter. He's not finished with her yet, either! 10 months later and I smile knowing where she came from, witnessing how far she has come, and looking forward to the beautiful future she has a head of her!


Prune Bath!

So last week I made some almond milk chocolate pudding, told Shawn I had an appointment, and left him with the chocolate pudding, Mila, and the Occupational Therapist for some sensory therapy! I have a hard time with messes...as in food messes....so my plan was brilliant!
When I found out how much fun Mila (and Zoya) had, I thought I should do more stuff like this. The OT suggested doing it more often for some good sensory input, and also to work on feeding skills :)

So tonight, I decided to let the girls get messy IN THE BATHTUB where it would be really easy to clean. This was perfect as the mess was contained and I didn't have to freak out the whole time :) Instead of pudding tonight we used baby food prunes....YUM! As you can see, the girls had a great time! I gave them bowls and spoons and they went to town! It was super easy to clean up too! (Did I mention I love that part?)


Thursday, September 13, 2012

Glasses for Mila!

Yesterday at Mila's eye appointment she was prescribed glasses. I have mixed feelings about this. I'm happy to know that she'll be seeing clearly soon, but sad when I saw her fighting so hard to get the trial frames off her face :( When I asked the eye doctor for suggestions on keeping frames on an 18 month old and he laughed and said "super glue." For some reason I didn't find that funny.

We stopped in to try on a few frames and it was my own fault for going when Mila was tired and probably hungry and had already spent over an hour at her eye appointment. We tried on some Miraflex and Specs 4 Us frames. Mila hated the Miraflex and they were so close to her eyes since her face is so flat. I don't blame her. I managed to snap one blurry picture of a pair of the Specs 4 Us before Mila lost it. We lasted about 10 minutes there LOL.
Poor baby looks less than thirlled about wearing glasses :( 

I called Specs 4 Us (frames designed specifically for kiddos with Down Syndrome) and they are sending me out a bunch of pairs to try! This will be great because we can do it without rushing and without pressure to choose on the spot! We can also choose times when she is happy and might tolerate it better. We're also looking into seeing if we can try a couple pair from Solo Bambini.

So those of you mamas that have been there, done that with glasses for an 18 month old (with DS), any suggestions on frames or what worked best or on how to get her to keep them on??? Has anyone used Specs 4 Us with a baby this young? They told me infants actually wear these ones....but it'd be nice to hear from someone whose child (around Mila's age) who actually wore the Specs 4 Us successfully (or not!) Thanks!

Sunday, September 9, 2012

Waaah! My baby is not a baby anymore....

Okay so maybe I'm overreacting, but look at this picture:
Soooooo not a baby anymore :( She is adding one bottom front tooth to her collection of 4 molars and two almost-popped-through-but-taking-forever-i-teeth! 

Attempt #1 of a picture with Great Grandma!

And #2...clearly Mila is not cooperating here and Grandma is laughing because she is so wiggly!

And finally on attempt #3, sheesh Mila could you smile? HA!

Working on her cheese face (I will have to upload the video another time...she makes this face when the camera flashes and we say "CHEESE" haha)

More Cheese!
"Num Num Num, hands are good for teething"

Zoya and Mila with their cousin who is a total sweetheart with the girls! :) 
Can't forget Zoya with Great Grandma! So thankful for my Grandma!

This was the "past nap-time sillies"

Just reading up on some Toy Story! It helps if you keep your eyes OPEN, Zoya ;)
My loves!

Too cute!
Hard to have a bad day with that smile....

"You talkin' to ME?"

I love that they love each other so much! (Right after this picture Mila pulled Zoya's hair hard and Zoya just laughed!)

Zoya is signing to Mila :) Such a good big sister!

High-5's all around!

Friday, August 31, 2012

A Great First Week!

Zoya's first week of school went fabulously! Her teacher is AH-mazing :) Every single day I picked her up she gave Zoya a compliment about her day. Talk about building trust and confidence. I really like the Montessori concept and Zoya's teacher really seems to understand that Zoya really needs to build a foundation of trust and know that she is safe, in order to effectively learn. Her teacher is the perfect mixture of nurture and high expectations.

Zoya has this amazing talent, you see, where she can walk into a room of 25 people and find each and every single person who has low expectations for her and totally play those people. Seriously, I don't know how she does it, but she certainly knows when she can get away with behaving in a way she'd never get away with here. I'm so happy that her teacher already has her card and knows that she is capable of behaving like her friends. Of course Zoya struggles a little more with some aspects of behavior such as attention to task and impulsivity, but she can clearly follow the same directions (just maybe with more prompting) as the rest of her class.

Zoya comes home each day exhausted, but singing songs she has learned and talking about her favorite friends. Sometimes she tells me things that really happened, while other times her information is not so accurate! haha! Her speech is still limited, but I try hard to ask a lot of questions about her day. I'm so proud of her great first week. I know not every week will be just as great, but I'm confident with her team this year, we can roll with the punches and make adaptations/accommodations that are in Zoya's best interest!

Monday, August 27, 2012

Zoya's First Day of School 2012

This is Zoya's second year of preschool! I can't even believe it. It was hard saying goodbye to her this morning even though I know she's in great hands. I just don't like being away from her!! Waaahhhh! Especially after we had all summer together! She woke up very excited and said "SCHOOL!" So many people are so ready for their kids to go back to school, and believe me there were a few days toward the end of summer where I thought that same thing, but today, I wish she could stay smaller longer and not have to go to school yet. But it is good for her, this mama heart just misses her! I know, it's only a few hours...and I'm counting down!







So blessed to love these two!





And she's OFF!

"What Mom? I have to wait for you?"

Really excited!

Silly girls!
Saying hello to her teacher!
Here's hoping for a good year!!!

Thursday, August 23, 2012

A Sign Language Post

With both girls we used sign language to help them with their communication since we knew speech would take longer to develop. I've heard the argument many times that teaching children sign language will hinder their speech, to that I say you're wrong! I'm sure there is some fancy research out there somewhere but I haven't looked. I don't need to because I've seen so many children learn sign language first and then take off with their speech later. 

Teaching my girls to COMMUNICATE is far more important to me than teaching them to speak, initially. But teaching communication is also so important for when that speech development DOES come! Depending on what type of therapist you come across you will hear so many different things about signing in regards to speech development. Some therapists will say to teach children very basic signs such as "more," "all done," "eat," "dada," etc. This is the path we've taken with both girls. Some therapists will say to only teach very specific signs, for example, you shouldn't teach them just to say "eat" you should teach them all the different food signs. Well based on their cognitive development as well as fine motor development when we started signing, we had to start on a more broad spectrum and then get more specific. For example, we started with teaching "eat" and when Zoya got really good with that then we would start teaching some specific food signs such as "banana." 

I think just the initial idea of teaching the girls that a sign gets them what they want is so important! "More" has been a really good sign for us to accomplish that with both girls. We've already seen decreased grunting and yelling and frustration from Mila because she understands that she is communicating her needs effectively. This makes her happy. Mila, like many babies learning sign, started using "more" for many things that she wanted (like when she wants my phone or a certain toy), but it was effective and we will expand upon that. They say it's like baby babble. When babies start babbling they babble the same sounds to communicate many different things until their speech develops further.  This is "sign language babble." Don't google that term because I just made it up haha. 

Here is Mila signing "More" and then "Eat." She started by needing hand over hand prompting to sign both of these words. She got really good with "more" and I would request that she sign "more" for bites of her snacks and meals. When she got that down and was doing it without prompting, I added "Eat."

Then she learned to sign "More Eat" all together. Today she was signing "More Eat" with no prompting from me (other than just waiting her out). 

I was talking to a friend who has a child with special needs as well and she said, "You know when we post things like that video you posted of Mila signing, many people don't realize that to get there you worked on that skill for every single meal and snack for months." She is exactly right. And I guess I didn't really ever think of that. Maybe that is why I am so proud when they learn something new, because I know how hard WE worked at it together. I know how many repetitions it took to cement the skill. So bear with me as I brag about my kids because they work so hard and when they meet milestones and accomplishments that might not seem like a big deal to parents of typical kids, it's definite cause for celebration here!

Wednesday, August 22, 2012

Babies with Down Syndrome Choose Life Too!

Have you seen the beautiful babes with Down Syndrome on REECE'S RAINBOW lately?
(P.S. I can't believe that picture on the fridge is really my Mila girl!)

Tuesday, August 21, 2012

Gearing Up for School!

Zoya will start her second year of preschool next week. She will be in a whole new program and classroom. We are very excited and hopeful about what Zoya will accomplish this year! She will be in a Montessori Classroom with 18 children from preschool through kindergarten age. Zoya will be eligible for one more year of preschool after this school year, or we could decide to send her to Kindergarten after this year (but I'm leaning toward keeping her in preschool longer just because it feels safer LOL).

We had Open House today and got to visit her classroom and meet her classmates. She did really great and had fun! I especially enjoyed the teacher's "no cupcake" speech :) I think she will be a fabulous fit for Zoya because she runs a tight ship and LOVES her job! She sees Zoya's potential already and values her for HER. It makes my heart so happy to know Zoya will be spending each morning with such a nurturing, caring teacher with high expectations who sees the value in each of her students! That combination is difficult to come by!

Here is our "little big girl" before leaving for Open House. She got almost 5 inches cut off her hair yesterday and I must say she looks so stinkin' adorable with her new do! She looks like such a big girl!!! Today as I watched Zoya in her classroom I was so thankful for this educational opportunity for her. I flashed back to our days visiting her at the orphanage and thought to myself how far she has come and how blessed we are to have access to such a great education for our sweet girl! I'll be praying for a super week for Zoya and her classmates as she embarks on this new journey on Monday!